by Panos Bonotis | 5 October 2020 | Newsletter 3
The EAPC are really delighted to be a part of the MyPal project consortium. Despite a global pandemic, causing some short but inevitable delays, the work of the consortium continues. This third MyPal newsletter charts the progress of the work on the project. In...
by Panos Bonotis | 4 October 2020 | Newsletter 3
Dr Christina Karamanidou from CERTH explains about what ePROs are and why they were selected for the two MyPal studies. Patient Reported Outcomes (PROs) are measures or questionnaires and they are the best way to collect information about a patient’s condition...
by Panos Bonotis | 4 October 2020 | Newsletter 3
Brno Clinical Center was invited to participate in the MyPal project because of their long-term participation in an international network and past involvement in numerous successful collaborations. In MyPal, Brno is the only one engaged in both the adult and child...
by Panos Bonotis | 4 October 2020 | Newsletter 3
Can you tell us a little bit about yourself and your background? Since 2017, I am Professor in Clinical Genetics at the Department of Molecular Medicine and Surgery, Karolinska Institutet, and work as a senior physician at Clinical Genetics, Karolinska University...
by Panos Bonotis | 4 October 2020 | Newsletter 3
Chronic lymphocytic leukaemia (CLLL) and myelodysplastic syndromes (MDS) are paradigmatic chronic haematologic neoplasms, typically involving elderly people and with a prolonged clinical course. They are both incurable except for the few patients eligible for a...
by Panos Bonotis | 4 October 2020 | Newsletter 3
Can you tell us a little bit about yourself and your background? I am a paediatric haematology-oncology consultant at the department of paediatric haematology-oncology at Hannover Medical School. About 90 children and adolescents with newly diagnosed malignancies are...